3 October 2011

Line site worsens

Paige is rapidly loosing her hair now, she's lost about 75% from her head, 25% of her eyebrows and about 15% of her eye lashes......but she's is still beautiful :-)
Anyway not so great news today, her line site now has a firm lump and is still a bit red, but it doesn't seem sensitive to touch and she doesn't have a temperature. So Dr Millard sent us for an ultra sound to start ruling out issues. Her ultra sound showed that it is quite a solid mass, rather than an accumulation of liquid or puss. The radiologist guessed that it might be her cuff that moved rather that any mass. Apparently a cuff is kept on the line when inserted so that it stays in situ, however since Paige was so little when her line was inserted it may have been cut and has now dislodged itself. The pediatric surgeon also had a quick look and he agreed that this may be the case. So we're off to Piam Brown tomorrow to see her lead consultant Mary Morgan and the surgeon that inserted her Central Line. Worst case is that the Central line may have to be removed and re-inserted, hopefully that's not the case. In the meanwhile she continues to have two anti biotics and does not have a temperature.

1 comment:

  1. I wish I lived nearer to you so I could help you as you continue this harrowing journey, but I will have to be content with continuing to hold you all in my thoughts and prayers. Your plucky little girl is an inspiration to me. I always smile broadly when I open this blog and see her cheerful face. God bless you.
    Love and hugs,
    Auntie Nancy