15 July 2013

End of Treatment

2 years and 3 months after she started Paige has finally reached the end of her treatment. She had her last dose of oral chemo last week Friday...

It feels odd not to monitor her eating at night (the chemo had to be given 1 hour after food and she had to wait another hour before having anything else to eat). This was also the first weekend that she didn't have her anti-biotics. I was filled with much anxiety at the thought of the end of treatment, what if she relapses? Can we cope with another set of treatment, and most of all can her little body endure any more???? But, as we all know, Paige sets the pace for us all and she now has a new passion for life itself that just can't be beaten! She is thoroughly enjoying her new freedom. We'll just have to continue to make the best out of each day and pray that all is well...........

We've also started testing her with dairy products and so far she has tolerated fromaige frais, chocolate and milk in certain products like bread. Her response to a chocolate petit filous "Mummy this is too nice, can I have some more?"

She is just so  grown up now, she's constantly telling us off, for instance. As we were driving back from the supermarket and she was having a chocolate drink:
"mummy please remember to drive slowly because I am drinking ok?"

About 5 minutes later she was finished, so I reached back to collect the carton, at which point she says
"mummy you're not supposed to do that while we're driving, we could have an accident, you should stop at the traffic lights and then take the packet!" 

This from my 3- (going on 13-) year old daughter :-).

Her carer has reported that she is very happy with all areas of her development and, as expected, her vocabulary is beyond her years. Her motor skills are normal, despite her steroids, chemo, etc. Needless to say, we are very pleased about that.

On another note, Samuel's teacher was also very pleased with his performance this year and reported that he is very popular with his classmates, and that he is one of the minority in his class that can do mental arithmetic - my dream come true :-). She also felt that we've only seen the tip of the iceberg in terms of his potential. He has had his naughty moments but, in the grand scheme of things, he is a fabulous big brother and loves and looks after his sister very, very well indeed.

So many things have happened in the last month, Paige celebrated her third birthday party with Peppa Pig, Jiggy Wrigglers and Cinderella. Paige had a special dance with Cinderella that what could be described as a 'Disney moment' and there wasn't a dry eye in the house! I have to admit it was an extremely emotional moment for me. All of Paige's entertainment and the venue was donated by Sally of Jiggy Wrigglers, just because Sally has a huge heart and wanted to do something nice for Paige, - Thank you so much Sally Paige'sparty was indeed magical!

Paige celebrated her end of treatment in grand style with a barbque hosted by Charlie and Juliette Whiting at their home. The event was a combination of their son Justin's 6th and daughter Charlotte's 3rd birthday party and a fundraiser for CLIC Sargent our nominated charity. The event was well attend and we raised over £500 in cash on the day. A huge thank you to Charlie and Juliette for offering to host the event.

Paige will have a monthly blood test and review at the oncology clinic at QA for the next 6 months. This will then reduce to once per quarter, and thereafter annually. She can only be given the status 'all clear' after 5 years and she will be discharged after 10 years. So we still have a bit to go. We will update this blog occasionally.

For now we're going to enjoy the hot English summer with my nephews Darien and Dhillon who are here for six weeks, and Paige's god father Richard who made a trip to the UK for her end of treatment celebration.

Thank you all for your support over the last 27 months. It really has made a big difference for us.

Paige, Lisa, Russell & Samuel