When I spoke to Dr Lousie Millard on Monday morning about Paige's line she suggested that we see her sooner rather than later at CAU. One look at her line and she advised that another swab was needed and Paige would have to spend the night! We were prepared for that and Paige was in particularly good spirits so we did. She ran all over the hospital for about 3 hours and Dr Millard realised how much energy she had when she was well! She was discharged on Tuesday and anti-biotics continued at home. By Wednesday the line swab was still positive with the same bacteria Staphylococcus aureus. So we took her again today for yet another swab with the understanding that if the swab was still positive for the bacteria, 'serious talks' would commence for removing the line.
Of course one look at the line site today and Dr Millard quickly conferred with Dr Mary Morgan and the decision was made to remove the line on Monday morning.
When her line is removed, it may not be replaced. She will have cannulas inserted for the her chemotherapy and finger pricks will be done for blood tests. For us we are now between a rock and a very hard place. Having a central line means easy access to blood, giving IV anti-biotics and doing blood tests. Not having a central line means painful cannulas every 4 weeks and finger pricks as often as every week, BUT lesser chance of recurring infections, and freedom to have a bath and go swimming and so many other things.
So we are schedule to be on the Shipwrecked ward at 7.00am on Monday morning at the Queen Alexandra Hospital, firstly to have her monthly Chemo followed by the Central Line removal under a general anesthetic, and hopefully be home for dinner.
For now, we have plans for Paulton's Park winter wonderland tomorrow, and quite looking forward to it.