Happy Birthday Paige!

Celebrations for madame's birthday started last week with her new house, I must admit I wasn't sure about a house this size, but she absolutely adores this house!

She's also been feeling fabulous and belted out some tunes for me :-) you will notice that the feeding tube is off and that's because it was her 'day off' when the third one came out in 6 days

This week has been rainy and as Paige now selects her own clothing she decided to dress up as a 'ganster' complete with Sam's hat that she put on herself, this was taken yesterday afternoon. Oh that ball was a gift from her Aunty June which she hasn't put down since she got it.

As for today's celebrations, she started with 4 gifts from her Uncle Richard, who spoils her at every opportunity and 2 more from aunty Joanne, she was all Peppa pigged out :-). Each gift is accompanied by a gulp and 'thank you'

Later on we had a small party for her with some of my friends from my mum's group. Paige of course was dressed in her Mini Mouse costume, the perfect gift from her Aunty Freddy. In this pic though she's actually sending a BBM to her Uncle Kevin.

It was so wonderful to have friends over for a cup of tea and some cake. Most of all it was incredible to have three screaming four year old boys running all over the house and Paige keeping apace with them. She certainly holds her own and is not afraid to assert her authority over her toys, regardless of how much older or taller the boys are!
In this photo Sam is giving her instructions on how to blow out the candle, little had he realised that she needed no help whatsoever!

She's now asleep clutching her Peppa pig stuffed toy in her Peppa Pig jammies, after having dinner with her peppa pig cutlery...you get the drift. I think that she had a wonderful day, and my fears of her not being able to cope/socialise with many children around her is slowly dissipating.

Next we have celebration number two on Saturday with a small BBQ.

Good night to all.

New feeding tubes

Life continues to be pretty 'normal' which is great for all of us. Paige has been hospital free for a month now, which is an absolute milestone for us this year :-) At last count done on May 29th her neutrophils were 2.0 ans all others good. She however has had no shortage of visits from the community nursing team.
I believe that I have mentioned before that she changed her clothes quite frequently! In so doing she managed to rip out her feeding tube on Tuesday morning, luckily one of our favorite nurses Laura was due to visit so that she was able to insert a new one. Although I think that secretly Paige just wanted to look special because we were due to have lunch with my one of our friends Sarah. She did look fab without the tube I have to admit.

Unfortunately she had a really big vomit on Wednesday night and the new tube fell out in the process so that it had to be replaced again on Friday (I managed to negotiate a 24 hour reprieve for her) this time by Jenny one of the kids favorite nurses, who was as traumatized as Paige after the event! Paige was fine as soon it was over of course and having a laugh with Sam. Later that day Paige received her first birthday pressie which was pretty difficult to hide since it's a playhouse, which she has now furnished with her cooker and some of their stools, it's safe to say that she loves her present and kept saying "thank you mummy for the entire 1/2 hour that it took for me to put it together....pic to follow

Also today the kids received a package from Tonya Archer, Russell's cousin who lives in Canada, she always sends the kids the most thoughtful pressies since birth. Today of course was no exception and they were wearing the clothes from the moment it came out of the package until bedtime. Paige got some beautiful hairbands in orange, turquoise and white, after trying them all on she settled for the white. Sam actually ran out of the toilet to get his and managed to put on the T Shirt before he even put his trousers on, (that's what he's doing in the photo) and as you can see from the lack of colour co-ordinations they just put the new clothes on over their existing ones!

A closer look at the new stuff... Paige now has quite a nice fluff of hair growing that is so soft but she still doesn't like taking photos

On another note we managed to miss Russell's family reunion last week Saturday June 2nd, because Russell had a minor but very necessary procedure done, but thanks to his Aunty June there was a private celebration so that we met the ones that traveled from afar namely Uncle Johnny, Aunt Angela and cousin Karen. Within minutes of meeting Karen the kids left us and played with her jumping all over her. Hopefully Johnny will send us some photos soon :-) we're weren't expecting to meet him. They postponed their plans for the day so that they could meet Paige and Sam, a great time was had by all on that afternoon, and it was so good to be with family again. Russell is recovering well and being looked after by Sam, Paige and I, he couldn't possibly ask for more !

Good day to all.