New feeding tubes

Life continues to be pretty 'normal' which is great for all of us. Paige has been hospital free for a month now, which is an absolute milestone for us this year :-) At last count done on May 29th her neutrophils were 2.0 ans all others good. She however has had no shortage of visits from the community nursing team.
I believe that I have mentioned before that she changed her clothes quite frequently! In so doing she managed to rip out her feeding tube on Tuesday morning, luckily one of our favorite nurses Laura was due to visit so that she was able to insert a new one. Although I think that secretly Paige just wanted to look special because we were due to have lunch with my one of our friends Sarah. She did look fab without the tube I have to admit.

Unfortunately she had a really big vomit on Wednesday night and the new tube fell out in the process so that it had to be replaced again on Friday (I managed to negotiate a 24 hour reprieve for her) this time by Jenny one of the kids favorite nurses, who was as traumatized as Paige after the event! Paige was fine as soon it was over of course and having a laugh with Sam. Later that day Paige received her first birthday pressie which was pretty difficult to hide since it's a playhouse, which she has now furnished with her cooker and some of their stools, it's safe to say that she loves her present and kept saying "thank you mummy for the entire 1/2 hour that it took for me to put it together....pic to follow

Also today the kids received a package from Tonya Archer, Russell's cousin who lives in Canada, she always sends the kids the most thoughtful pressies since birth. Today of course was no exception and they were wearing the clothes from the moment it came out of the package until bedtime. Paige got some beautiful hairbands in orange, turquoise and white, after trying them all on she settled for the white. Sam actually ran out of the toilet to get his and managed to put on the T Shirt before he even put his trousers on, (that's what he's doing in the photo) and as you can see from the lack of colour co-ordinations they just put the new clothes on over their existing ones!

A closer look at the new stuff... Paige now has quite a nice fluff of hair growing that is so soft but she still doesn't like taking photos

On another note we managed to miss Russell's family reunion last week Saturday June 2nd, because Russell had a minor but very necessary procedure done, but thanks to his Aunty June there was a private celebration so that we met the ones that traveled from afar namely Uncle Johnny, Aunt Angela and cousin Karen. Within minutes of meeting Karen the kids left us and played with her jumping all over her. Hopefully Johnny will send us some photos soon :-) we're weren't expecting to meet him. They postponed their plans for the day so that they could meet Paige and Sam, a great time was had by all on that afternoon, and it was so good to be with family again. Russell is recovering well and being looked after by Sam, Paige and I, he couldn't possibly ask for more !

Good day to all.